Passing for Normal

Jared and Colleen will be sharing stories from their unusual life as expats that are also sorting through grief after the passing of their daughter Claire, who live with Rett Syndrome for 15 years.

Episodes

Jun 13, 2026

42 min

Jared and Colleen talk about their adventure of moving back to Austria, as Americans, who haven't yet gotten comfortable with things working out. They discuss how grief impacts everything and how they are trying to find ways to enjoy what they can. 

May 31, 2026

36 min

Jared and Colleen discuss their upcoming move and the mental load that brings as well as the concept of integrating grief and moving with it, as a part of the story, not the center. 

Motherhood Day

May 3, 2026

May 3, 2026

36 min

In this episode Jared is back! We discussed the contentious relationship we have with Mother's Day and Bereaved Mother's Day, a bit of the history around the days, and if we could change things, what we would want to see. If you have any thoughts we would love to hear from you! Send a message on Instagram @_colleenenglish 

Senioritis

Apr 20, 2026

Apr 20, 2026

33 min

Chloe is back and we talk about senioritis as she counts down to high school graduation and Colleen counts down to the move. We discuss SMOs, significant moments of overwhelm and how each copes with them differently. 

Apr 13, 2026

32 min

We are back! In honor of siblings day, Chloe joined me to talk about what it's like being the typical, surviving sibling. She shares her hot takes on the concept of the glass child, growing with grief and what we managed to do right as parents. 

Sep 21, 2025

29 min

In this episode we discuss the life altering, disorienting process of recovering, falling into normal, and pursuing magic again.

Sep 7, 2025

31 min

After a hiatus, Jared is back! We talk briefly about where he's been and why he's returning to the podcast now. In honor of it being Father's Day down in Australia, we focused our conversation around a dad's perspective on being a parent/caregiver. Jared shares how he told strangers in Hobbiton about our chaotic life and why he thinks reading fantasy with the girls was one of his best dad moves.

Aug 20, 2025

15 min

After my unexpected hiatus I am back and discussing the funk I've been in and reflecting on one of the lessons I learned from Claire, to do hard things, you need support.

May 6, 2025

13 min

It is no secret that I don't love Mother's Day and the consumer based forced nature of the holiday. Plot twist, I was very excited to learn about the roots of the holiday and how inclusive it inherently is of the bereaved. I would love to hear your thoughts, do we need a bereaved Mother's Day too? Message me on Instagram @_colleenenglish

Adapt

Mar 13, 2025

Mar 13, 2025

12 min

Lessons from Claire: Adapt. I know I am preaching to the choir on this. This episode is not about how to adapt things for your child. It is a reminder to adapt things for yourself and a story about how much I love coffee and believe in the power of community.
I would love to hear from you! Please let me know what you think of the podcast on Instagram @_colleenenglish
You can find me on substack too! https://substack.com/@colleenenglish

About Us

When our daughter Claire was diagnosed with Rett Syndrome in 2007 we were underwhelmed by the information about life with the disorder online, so I started a blog and shared our stories. This lead to connection with others in similar circumstances that I am grateful to be connected with. It changed the game for us to feel less alone.We built a beautiful life in spite of our challenges and made loads of incredible memories that more than offset the hardships.

In 2021 it all changes when Claire passed on to her next adventure unexpectedly. It was the most disorienting and traumatic event of our life. As we work to continue living and make sense of what life is now, we have noticed that there's not a lot of content around child loss for those who were also caregivers to a multiply disabled, medically fragile child. We want to share our story and hopefully meet others with similar circumstances again and maybe somebody out there will feel a little less isolated because this is being talked about.

 

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