{"store":{"baseInfo":{"podcastTitle":"Passing for Normal","slug":"passingfornormal","podcastDescription":"Jared and Colleen will be sharing stories from their unusual life as expats that are also sorting through grief after the passing of their daughter Claire, who live with Rett Syndrome for 15 years.","podcastLogo":"https://pbcdn1.podbean.com/imglogo/image-logo/16377480/Passing_3000_x_3000_px__z54wfy.png","podcastShareLogo":"https://d2bwo9zemjwxh5.cloudfront.net/image-logo/16377480/Passing_3000_x_3000_px__z54wfy_1200x628.jpg?s=c8b47e8f4da618e38a9c5690f9cda0ab&e=png","podcastUrl":"https://passingfornormal.podbean.com","podcastCanSearched":true,"feedUrl":"https://feed.podbean.com/passingfornormal/feed.xml","theme":"elegant","podcastDeepLink":"https://www.podbean.com/pw/pbblog-j9c43-f9e688?from=usersite","removePodbeanBranding":"no","brandingLogo":null,"timeZone":{"timeZoneId":75,"gmtAdjustment":"GMT+10:00","useDaylightTime":1,"value":10,"text":"(GMT+10:00) Canberra, Melbourne, Sydney","daylightStartTime":"First Sunday of October +2 Hours","daylightEndTime":"First Sunday Of April +3 Hours/First Day Of Next Year","timezone":"Australia/Sydney"},"podcastDownloads":null,"totalEpisodes":29,"showComments":true,"iOSAppDownloadLink":null,"customizeCssUrl":null,"androidAppDownloadLink":null,"showPostShare":true,"showLike":true,"author":"Colleen and Jared English","enableEngagementStats":true,"shareEmbedLink":"https://admin5.podbean.com/embed.html?id=pbblog-j9c43-f9e688-playlist","language":"en","sensitivitySessionExpireTime":3600,"podcastApps":[{"name":"Apple Podcasts","link":"https://podcasts.apple.com/us/podcast/waitwhat/id1701381616","image":"https://pbcdn1.podbean.com/fs1/site/images/admin5/apple-podcast.png","title":null},{"name":"Podbean App","link":"https://www.podbean.com/pw/pbblog-j9c43-f9e688?from=usersite","image":"https://pbcdn1.podbean.com/fs1/site/images/admin5/podbean-app.png","title":null},{"name":"Spotify","link":"https://open.spotify.com/show/6RJFPePw89QSmdB0rb70xH","image":"https://pbcdn1.podbean.com/fs1/site/images/admin5/spotify.png","title":null},{"name":"Amazon Music","link":"https://music.amazon.com/podcasts/9d913ab3-3d0a-4753-85ec-8ad237c9a37a","image":"https://pbcdn1.podbean.com/fs1/site/images/admin5/AmazonMusic.png","title":null},{"name":"iHeartRadio","link":"https://iheart.com/podcast/169982148","image":"https://pbcdn1.podbean.com/fs1/site/images/admin5/iHeartRadio.png","title":null},{"name":"PlayerFM","link":"https://player.fm/series/3569869","image":"https://pbcdn1.podbean.com/fs1/site/images/admin5/PlayerFM.png","title":null},{"name":"Podchaser","link":"https://www.podchaser.com/podcasts/passing-for-normal-5708826","image":"https://pbcdn1.podbean.com/fs1/site/images/admin5/Podchaser.webp","title":null}],"components":{"base":[{"id":"MainStyle","val":"light"},{"id":"Font","val":"Avenir"},{"id":"SecondaryFont","val":"Avenir"},{"id":"PlayerColor","val":"#8fc31f"},{"id":"PlayerStyle","val":"player1"},{"id":"PlayerWave","val":"show"},{"id":"Favicon","val":null},{"id":"CookiesNotice","val":"hide"},{"id":"CookiesNoticeContent","val":"

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About Us

When our daughter Claire was diagnosed with Rett Syndrome in 2007 we were underwhelmed by the information about life with the disorder online, so I started a blog and shared our stories. This lead to connection with others in similar circumstances that I am grateful to be connected with. It changed the game for us to feel less alone.We built a beautiful life in spite of our challenges and made loads of incredible memories that more than offset the hardships.

In 2021 it all changes when Claire passed on to her next adventure unexpectedly. It was the most disorienting and traumatic event of our life. As we work to continue living and make sense of what life is now, we have noticed that there's not a lot of content around child loss for those who were also caregivers to a multiply disabled, medically fragile child. We want to share our story and hopefully meet others with similar circumstances again and maybe somebody out there will feel a little less isolated because this is being talked about.

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In this episode we discuss how awkward October is, between Rett Syndrome awareness in our new world where nobody knows about it, the anniversary of the diagnosis and Claire's birthday. Jared and Colleen share their separate strategies for dealing with the birthday and when to tell new people about Claire.

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