{"store":{"baseInfo":{"podcastTitle":"Passing for Normal","slug":"passingfornormal","podcastDescription":"Jared and Colleen will be sharing stories from their unusual life as expats that are also sorting through grief after the passing of their daughter Claire, who live with Rett Syndrome for 15 years.","podcastLogo":"https://pbcdn1.podbean.com/imglogo/image-logo/16377480/Passing_3000_x_3000_px__z54wfy.png","podcastShareLogo":"https://d2bwo9zemjwxh5.cloudfront.net/image-logo/16377480/Passing_3000_x_3000_px__z54wfy_1200x628.jpg?s=c8b47e8f4da618e38a9c5690f9cda0ab&e=png","podcastUrl":"https://passingfornormal.podbean.com","podcastCanSearched":true,"feedUrl":"https://feed.podbean.com/passingfornormal/feed.xml","theme":"elegant","podcastDeepLink":"https://www.podbean.com/pw/pbblog-j9c43-f9e688","removePodbeanBranding":"no","brandingLogo":null,"timeZone":{"timeZoneId":75,"gmtAdjustment":"GMT+10:00","useDaylightTime":1,"value":10,"text":"(GMT+10:00) Canberra, Melbourne, Sydney","daylightStartTime":"First Sunday of October +2 Hours","daylightEndTime":"First Sunday Of April +3 Hours/First Day Of Next Year","timezone":"Australia/Sydney"},"podcastDownloads":null,"totalEpisodes":30,"showComments":true,"iOSAppDownloadLink":null,"customizeCssUrl":null,"androidAppDownloadLink":null,"showPostShare":true,"showLike":true,"author":"Colleen and Jared English","enableEngagementStats":true,"shareEmbedLink":"https://admin5.podbean.com/embed.html?id=pbblog-j9c43-f9e688-playlist","language":"en","sensitivitySessionExpireTime":3600,"podcastApps":[{"name":"Apple Podcasts","link":"https://podcasts.apple.com/us/podcast/waitwhat/id1701381616","image":"https://pbcdn1.podbean.com/fs1/site/images/admin5/apple-podcast.png","title":null},{"name":"Podbean App","link":"https://podbeanapp.page.link/?link=https%3A%2F%2Fpassingfornormal.podbean.com%3Faction%3DopenPodcast%26podcastId%3Dpbblog16377480%26podcastIdTag%3Dj9c43&dfl=https%3A%2F%2Fpassingfornormal.podbean.com&utm_campaign=pb_web&utm_source=podbean_web&utm_medium=dlink&imv=670&amv=530&isi=973361050&ibi=com.podbean.app.podcast&ipbi=com.podbean.app.podcast&apn=com.podbean.app.podcast","image":"https://pbcdn1.podbean.com/fs1/site/images/admin5/podbean-app.png","title":null},{"name":"Spotify","link":"https://open.spotify.com/show/6RJFPePw89QSmdB0rb70xH","image":"https://pbcdn1.podbean.com/fs1/site/images/admin5/spotify.png","title":null},{"name":"Amazon Music","link":"https://music.amazon.com/podcasts/9d913ab3-3d0a-4753-85ec-8ad237c9a37a","image":"https://pbcdn1.podbean.com/fs1/site/images/admin5/AmazonMusic.png","title":null},{"name":"iHeartRadio","link":"https://iheart.com/podcast/169982148","image":"https://pbcdn1.podbean.com/fs1/site/images/admin5/iHeartRadio.png","title":null},{"name":"PlayerFM","link":"https://player.fm/series/3569869","image":"https://pbcdn1.podbean.com/fs1/site/images/admin5/PlayerFM.png","title":null},{"name":"Podchaser","link":"https://www.podchaser.com/podcasts/passing-for-normal-5708826","image":"https://pbcdn1.podbean.com/fs1/site/images/admin5/Podchaser.webp","title":null}],"components":{"base":[{"id":"MainStyle","val":"light"},{"id":"Font","val":"Avenir"},{"id":"SecondaryFont","val":"Avenir"},{"id":"PlayerColor","val":"#8fc31f"},{"id":"PlayerStyle","val":"player1"},{"id":"PlayerWave","val":"show"},{"id":"Favicon","val":null},{"id":"CookiesNotice","val":"hide"},{"id":"CookiesNoticeContent","val":"

Cookies Notice

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About Us

When our daughter Claire was diagnosed with Rett Syndrome in 2007 we were underwhelmed by the information about life with the disorder online, so I started a blog and shared our stories. This lead to connection with others in similar circumstances that I am grateful to be connected with. It changed the game for us to feel less alone.We built a beautiful life in spite of our challenges and made loads of incredible memories that more than offset the hardships.

In 2021 it all changes when Claire passed on to her next adventure unexpectedly. It was the most disorienting and traumatic event of our life. As we work to continue living and make sense of what life is now, we have noticed that there's not a lot of content around child loss for those who were also caregivers to a multiply disabled, medically fragile child. We want to share our story and hopefully meet others with similar circumstances again and maybe somebody out there will feel a little less isolated because this is being talked about.

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After an unexpected hiatus I am thrilled to be back with Chloe as a special guest, talking about her birthday, a few things about Aussie culture and the weirdness around having living with a bereaved mom.

You can find my writing on this topic on at my Substack, Sweet 16

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You can find my writing on this topic on at my Substack, Sweet 16

Sweet 16

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