Passing for Normal

Jared and Colleen will be sharing stories from their unusual life as expats that are also sorting through grief after the passing of their daughter Claire, who live with Rett Syndrome for 15 years.

Episodes

Sep 6, 2024

39 min

In this episode we talk about how each of us uses social media differently and how complicated our relationships with it are. We also give a quick update/ follow up on Chloe's school.

Aug 14, 2024

47 min

Special guest Chloe wanted to come on and talk about how stressful school has been and how this is impacted by being an immigrant with a dead sister but nobody notices that. We also talk about how a love for accordions is getting her through and why Colleen irrationally went to great lengths to purchase a 90 year old German accordion.

Back Down Under

Aug 3, 2024

Aug 3, 2024

41 min

After an eventful trip back to California, we are settled back into winter to talk about how the trip home was in reality after we discussed what we expected in the previous episode. Spoiler, we had a great trip. We also talk about how happy we are to be sad.

Jul 17, 2024

47 min

I know we said we were taking a break but surprise! We decided that we wanted to share something that was a little more raw while we are in the space to talk about it. In this episode we talk about some of the reasons that made the last place we lived with Claire really hard. In our typical lighthearted way, we discuss some very heavy topics closely related to Claire's death and how going back to this place feels very different for the two of us. We realize this is sensitive and may upset some but we hope that it will also help others in similarly difficult situation feel less alone. We recognize it is not common to talk about circumstances around a child's death, but the fact of the matter is this is our story and talking about it helps to remember the reality of what we are working with. For those of you that choose to listen, we appreciate it and would love to hear your thoughts. You can message us on instagram @passing_for_normal

Worst best case

Jun 14, 2024

Jun 14, 2024

33 min

In a special Friday evening episode, we discuss Chloe not needing us, how crazy winter in Australia is and the complicated feelings around social expectations of grieving parents. This will be our last episode until August. We are looking forward to a break and coming back with some fresh stories.

Jun 2, 2024

52 min

In this episode we talk about self care, how ridiculous a lot of the messaging around it is and what we have found to be helpful. We also give a little update on what we have learned about the Australian high(er) school situation and talk about how awesome ASCEND, the upcoming conference hosted by the International Rett Syndrome Foundation.

May 26, 2024

23 min

We talk about how music has played a role in many of our more challenging times and how weird it is to be in a fairly normal little groove.

May 19, 2024

35 min

In this episode we discuss learning a whole new school system, which moves graduation up by two years and how Colleen can't cry so she's incredibly overwhelmed by dress shopping, which should be a fairly simple and straight forward process. We also talk about learning how to podcast and not delete 8 minutes of a show. So much to learn, thank you for being here.

May 13, 2024

30 min

We've had a lot of coffee over the years. Maybe we had too much before we recorded this. Apologies that the microphones aren't more balanced and the conversation wondered, we are learning as we go.

May 6, 2024

52 min

In this episode we discuss our typical daughter Chloe, yet in reality she is anything but typical. She is excellent and has shown us parts of life we would have missed without her. This discussion ended up being a bit more about the wild years when we decided to grow the family and chaos that we managed to survive with two young girls. We also touch on a bit of her perspective with her sisters death and life after that. This won't be the last time we talk about her as she is one of our favorites and we plan to have an episode with her in the room soon.

About Us

When our daughter Claire was diagnosed with Rett Syndrome in 2007 we were underwhelmed by the information about life with the disorder online, so I started a blog and shared our stories. This lead to connection with others in similar circumstances that I am grateful to be connected with. It changed the game for us to feel less alone.We built a beautiful life in spite of our challenges and made loads of incredible memories that more than offset the hardships.

In 2021 it all changes when Claire passed on to her next adventure unexpectedly. It was the most disorienting and traumatic event of our life. As we work to continue living and make sense of what life is now, we have noticed that there's not a lot of content around child loss for those who were also caregivers to a multiply disabled, medically fragile child. We want to share our story and hopefully meet others with similar circumstances again and maybe somebody out there will feel a little less isolated because this is being talked about.

 

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